Well where do I start?
We took Zack to his Endo on Tues to have his GH test done, we showed up about 15 minutes early and some of the nurses in the clinic at Cardinal Glennon came out to see him and commented on how much he has grown.
Finally we get called back and Sherie started telling us what we was going to be doing. We start with the right arm first for the IV, and within minutes the vein blew. About 10 minutes later after we calmed Zack down we attempted his left arm, wouldn't ya know it...... it blew also... He is so little that his veins are very small. I remember trying to have blood drawn for his other test and his veins would collapse. So now we just wait..... they are going to try to submit this to Insurance without the test based on his Medical Diagnosis and see if it goes through.
Putting him on GH would not only help him grow BUT it has other benefits as well..... it will help with muscle growth and his developments in other areas as well.
Now on to his food..... whewwwwwwww
I have not bought baby food in almost 3 weeks, we are really trying to get him off it. We are TRYING to feed him table food and sometime he is really having NO part of this. But for the most part he is doing really well. I found some sweet potato casserole in a can and he loves it with cinn, brn sugar and butter mixed with it.
His nutritionist was here yesterday and we are talking about taking him off formula finally....I am already mixing his formula 1/2 and 1/2 with whole milk. So this should make things go smoother.
She also is switching him from poly~vi~sol to Flintstones ...YEAH!!
Zack is also doing really well with his legs braces(splints)it gives him better control over his foot and ankle movements. I think it makes him more stable. With these he can actually bear weight on his legs and feet... WOOHOO!!
It also helps keep his feet in the right position, instead of him curling his feet in and toes under.
In 4 days on the 20th it will be the 1 yr Anniversary of Zack and myself being together forever. This is when I moved to Guat to care for him and finish the case myself with the help of Mayra. I really can't believe we have been together for 1 yr!!?? Where has that time went??
Our family forever day is not till Sept. as that is when we was actually ALL 3 together forever.
I will try to get some new pics together over the next few days and post some new ones. I think I am behind LOL
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2 comments:
You go Zach, and keep up the growing!
I know it's hard to believe this time last year we were fighting to get our kids home...I have to say Zach is so lucky to have you and Steve, he would never be this far in his development over this past year without love from you guys!
Give that little pumpkin' a kiss from me!
Wow, Kim and Steve,
It sounds like little Zach is just doing amazing. He has come such a long way and you guys have been the best parents to him. He's so lucky to have you both.
Enjoy your "more time" with him.
Susan & Luis
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